Patient and Public Involvement
“No matter how complicated the research, or how brilliant the researcher,
patients and the public always offer unique, invaluable insights. Their advice when designing,
implementing and evaluating research invariably makes studies more effective, more credible
and often more cost efficient as well”
Professor Dame Sally C. Davies, Director General of Research and Development
“Members of the public bring perspectives and skills that are not always the same as those of
researchers and health and social care professionals. Their involvement helps to ensure that
the entire research process is focused on what is important to people and is therefore more
likely to produce results that can be used ti improve health and social care services”
Sir Nick Patridge, Chair, INVOLVE
Register for Healthcare Involvement and Technology Evaluation (RHITE)
Public involvement in research is based on the key principle that people who are affected by research have a right to have a say in what and how research is undertaken. In recent years, there has been a growth of interest in public involvement and this had led to shaping the research agenda to become more in line with the public’ s interests and concerns.
The NIHR Brain Injury MedTech Co-operative (MIC) has developed a volunteer register for patients, carers and other interested persons to assist in the development and advance of healthcare technologies. Registering an interest ensures that interested parties receive information about the MIC activities and be notified of opportunities to take part in research.
This register is delivered in partnership with a Cambridge University partner, the Outcome Registry Intervention and Operation Network (ORION).
How can you help us make a change?
The effects of brain injury can vary greatly, therefore we need a wide range of people with different experiences to help us. The National Institute for Health Research (NIHR) and the MedTech Co-operative (MIC) would like to work collaboratively with patients, carers and other interested persons to build on their strengths and expertise around brain injury. If you would like to help in advancing brain injury healthcare research and technologies, please join our register by visiting the following link: https://orioncloud.org/rhite
If you prefer to complete the registration form using either an electronic PDF or in hard copy, please contact us:
- Email: email@example.com
- Telephone: 01223 336 936
- Post: NIHR Brain Injury MIC, Box 167 Cambridge Biomedical Campus, CB2 0QQ
Once you submit your registration, we will send you our Welcome Pack which explains how you can contribute to our work.
Please refer to the Frequently Asked Questions below for further information.
Download a printable copy of this information here.
For more information about the work of the NIHR Brain Injury MedTech Co-operative, please explore the rest of our website.
Frequently Asked Questions
What will happen now?
Your contact details are stored on our secure server. When we have projects or events, which may interest you, then we shall contact you by your preferred method.
When will I hear from you?
There may be long periods of time when we do not contact you, if there are no relevant projects or if we do not have a need for involvement in other aspects of our work at a particular time. However we shall keep you updated with regular newsletters.
How will my data be stored?
The Register (database) will be stored securely on a University of Cambridge server. All personal information is processed and stored according to the Data Protection Act (1998), and will not be passed onto any third party unless required by law. Your personal details are securely encrypted during storage (AES-256), and transmission (SSL).
Who has access to my data?
The data held on the patient register can only be seen by a member of the MIC team. The MIC team members are trained to handle personal and sensitive data.
Can I see my entry in the Register?
Yes – please contact us and we will give you a print out of your entry on the database
How long will my data be stored for and what will happen to it when the projects finish or if the MIC closes?
Your personal data will remain on the Register unless you request that it is removed. We shall be contacting everyone who is on the register at regular intervals to check if they still want to be involved, and to update their information.
What if I change my mind?
If you want to leave the register then we shall delete all your records as soon as we hear from you. Please contact us at:
NIHR Brain Injury MedTech Co-operative
Box 167, Department of Clinical Neurosciences
Cambridge Biomedical Campus
Cambridge CB2 0QQ
Tel: 01223 336936